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CCSG Services |
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Public Meetings Four times a year the CCSG invites it's members and the general public to attend a meeting at which guest speakers (usually medically qualified) talk to those present about some aspect of IBD. Meetings take one of three formats: seminar, open forum (no specific topic) or group discussion (2 or more invited guests in attendance). Meetings are advertised in the local newspapers, and via the CCSG Newsletters and on our web site. See here for the archived reports from previous meetings. CCSG NewsThe quarterly newsletter of the CCSG includes:
Gut FeelingThis is the CCSG's national newsletter which is sent to all CCSG members throughout New Zealand. Sent out 3 times per year, this newsletter contains information about activities from all the CCSGs. The CCSG LibraryThis is a collection of specialist books from all over the world. Topics covered include:
The Community Contact ServiceThis service matches people who request this service to volunteers with the same condition as well as similar experience. Contacts can be: face-to-face, in-home or hospital. Members who volunteer to be part of this service receive a Contact Service Booklet which contains relevant information about the CCSG, basic anatomy, and various important telephone numbers. The National Australian & New Zealand IBD Family Register Research Project The objective of the Australian and NZ IBD Family Register project is to collect information and DNA from families in whom multiple individuals have been diagnosed as suffering from one of the forms of IBD. Subsequent research aims to identify causative genes for IBD, then to understand how these genes influence disease processes at the cellular level: the ultimate goal is to prevent or cure these conditions. There may be the added benefit of providing better diagnostic tests. This effort involves collaborations at both the national and the international level. More than 260 Australian and New Zealand families are participating in the project. Medical Database and InternetThe CCSG has access to a commercial medical database for the purpose of answering members' questions as well as sourcing additional information about research topics, such as the recent advances in genetic markers for Crohn's disease and the stage of development of new drug therapies. Questions from members can also be posted to internet newsgroups as well as specialist medical forums such as that operated by the Crohn's and Colitis Foundation of America via the World Wide Web. NZ and Overseas OrganisationsThe CCSG has 12 branches in NZ. There are IBD support organisations in many other countries. A list of these can be found here. |
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Email: ccsg@clear.net.nz |
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